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Parent Resources
This page offers practical tools and guidance to help you navigate the complexities of epilepsy and mental health.
Free downloadable resources
This Seizure First Aid handout can be given to people in your child's life so that they understand what to do when there is a seizure.
Your child can complete this customisable sheet, My Seizure Letter and give it to their teachers to ensure they understand your child's specific needs and mental health triggers.
This Sibling Seizure Plan is a resource to help siblings of a child with epilepsy. For the other children/children in your family to help them know what to do when their brother or sister has a seizure
Support for Families and Caregivers
Facing a fresh epilepsy diagnosis or navigating new life stages can feel overwhelming. To ensure you feel empowered and equipped, we have gathered a selection of Australian organisations, scientific guides, and functional toolkits to support your household and school transitions.
Community and National Support Networks
Epilepsy Foundation (Australia):
Based in Victoria, the Epilepsy Foundation offers individual and family services, lifestyle toolkits, and family education workshops. They also run peer-led support groups for parents and carers to connect with others who truly understand.
Epilepsy Smart Australia:
A nationwide partnership offering comprehensive resource hubs. You can access the National Epilepsy Support Service (NESS) at 1300 761 487 (Monday to Friday, 9 am–5 pm) for free, direct phone support and guidance from a specialist team.
Epilepsy Action Australia:
Provides community support, individual service planning, seizure management training, and specialty camps for young people.
Practical Toolkits and Emergency Planning
Epilepsy Management Plans (EMP):
Access official templates through Epilepsy Australia to ensure caregivers, coaches, and extended family members know precisely how to respond during a seizure.
Epilepsy Smart Schools:
A critical resource featuring classroom checklists and student profile templates. This program helps bridge the communication gap between home and school, ensuring educators recognise how epilepsy affects focus and information processing.
The Royal Children's Hospital Melbourne:
Clinical fact sheets, offering detailed booklets on medications, specific syndromes, and specialised pediatric neurological care.
Empowering Your Child through Education (Ages 5–12)
Raising Children Network: Offers accessible, parent-focused materials on discussing diagnoses and triggers with children in an encouraging way that prioritises safety without increasing anxiety.
Wellbeing and Mental Health Resources
Kids Helpline:
24/7 counselling service for youth aged 5 to 25. If your child needs a safe space to discuss their feelings, they can reach out at 1800 55 1800.
Carer Gateway:
Supporting a child with chronic health needs requires significant support for carers. This service provides free emotional coaching, financial aid, and respite options for primary caregivers.
Contact them at 1800 422 737.
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